Sunday, January 24, 2016

Mayo visit January 2016...

“Ms. Davidson?”  anxiously questioned the nurse. “Ms. Davidson, can you hear me?  Allyson, can you hear me? Squeeze my hand if you can hear me.”

As I was coming out from anesthesia from a bronchoscopy I could hear what was going on around me, but I wasn’t really there,  my mind was still foggy and I couldn’t communicate.  I was just ordered to squeeze someone’s hand, I could feel her hand on mine, but I couldn’t squeeze.  I squinted my eyes and saw that I was surrounded by a circle of medical personnel, some attending to me, some just gawking.  What was going on?  What was wrong with me?  I could feel some sort of mask on my face and I had a chemical taste in my mouth, but what was happening?  Then an involuntary force hit me, I started coughing violently, flopping my body in a contorted heap on the table.  I couldn’t stop coughing and coughing, a deep, hurtful  but unproductive cough.  I went through several coughing attacks, with the doctor ordering them to put two different medicines through the mask strapped to my face.   In one of the lulls between the attacks I started to feel different, like a heavy weight was placed on my chest.  I began to feel the effects of my body being denied oxygen.   I was drowning in a waterless pool, not being able to outwardly scream, feeling helpless, with extreme panic assaulting my mind.   Suddenly I heard a voice declare, “She’s not breathing!”  

The next minutes, not really sure how long, were filled with a series of medical events, with me in and out of consciousness.  Mask ripped off.  Injection in my IV.   Head thrust back.  Limp body.  New device on my face.  Manual breathing.  Feeling the benefits of oxygen.  Lungs working.  Lungs failing.  Drowning again.  Needle into my arm.   Feel air in my lungs.  Propped up, stiff board behind my back, mobile x-ray.   Lungs working.  Getting air.   Drowning again.  Lungs failing.  Body shaking.  Too many voices for me to make out what was going on.  Plastic shoved in my mouth, feel something cold going down my throat.  Machine attached to my face.  Getting air.  No more drowning.  Intensive Care Unite (ICU) here I come.  

I was conscious when I got to ICU and when the reality of what had happened hit me, tears started to trickle from my closed eyes.  The night before I had PROMISED a very upset Andrew that I would be home to put him to bed.  How could I explain to my three-year old why I couldn’t keep that promise?  Sorry, sweetie, I almost died so I can’t sing you songs tonight?  My heart broke and sadness momentarily overtook me.  I HATED cancer.  The attending nurse saw the tears and gently tried to wipe my face since my body was attached to all sorts of machines.   I was embarrassed, angry, sad, scared, relieved and yet numb all at the same time.  I just wanted to melt away into the bed.   When Bill arrived in ICU, my tears kept coming, still unable to talk.  Despite all the fear, anger and confusion, I also felt immense gratitude.  I recognized that I was lucky, real lucky.  I was alive.  There are so many that suffer in this world with cancer that don’t have access to medical resources or support from family and friends.  I have been to many third world countries where people suffer, with no options at all, suffering with no hope of a future.   I am blessed.  I have my belief in God, a loving God, supporting me through these challenges.  I feel His love and concern.  I felt His love through the love and kindness bestowed upon me and my family from others.

Furthermore, despite the ICU setback, just the day before I had received great news!  One brain tumor, gone.  The other brain tumor significantly smaller.  Lung tumor, shrinking.  Tumors in my intestines, also shrinking.  The combo of radiation and drugs seem to be working their magic!

Unfortunately, the scans also showed I have a few new “hot spots.”  One of those was in my lung, which is why one reason I had the bronchoscopy.  Biopsy for came back negative for Melanoma!   My lung is still partially collapsed and pneumonitis is my constant companion, but I’ll take it over Melanoma.  I go back to Mayo next week to check out my other hotspot in my pelvis, hoping that my new trend of a negative biopsy continues.  Feeling good, feeling grateful, so glad I am home so I can tuck Andrew and all my kids in bed tonight.  

(FYI:  I recovered quickly in ICU.  The doctors explained that I experienced a rare event when trauma to the lungs combined with anesthesia causes your lungs and voice box to seize, making it so you can't breathe.  My lungs decided they had had too much trauma, they were done. Modern medicine helped them decide they needed to keep going.  When I talked to my mom and told her what happened she was obviously upset.  I told her not to worry, I wasn't that close to dying.  I didn't see any bright lights, no lighted tunnels, my father wasn't standing there with outstretched arms.  Anyway, my grandfather, who was quite a character would probably have yelled at me to, "get the #!@#!  back to earth!"  So, I was safe, not even close.  Also, I am not going to post any pics of me in ICU, I have too much pride.)

Thursday, January 7, 2016

New Year's Resolutions

I stared at the computer screen wondering what to write.  It stared back.  My mind was blank.  What does one write down for a New Year's Resolution?  You would think I would write something like, "Live!"  "Beat Cancer!"  or some other positive notion of conquering the disease that is ravishing my body.  However, I can't.  I don't even know if I'll live until 2017.  Whether I live or die is completely out of my control.  I find out this week if Keytruda is working.  It worked for President Jimmy Carter, so maybe it will work for me.  I am not giving up or stopped trying to be positive, but how can I set a goal to make my medicine work, to "Conquer Cancer!"  What goals should I set under the circumstances?

I started with, "Get out of bed everyday."  Well, I have a hard time keeping that one.  Some days are good, or even really good, and some days are bad, really bad. No rhyme or reason to it, just is.  I never know what tomorrow brings.  Scratch that one.  Next resolution, well, I had a hard time getting to a next one.  Every idea that I came to was quickly eliminated, but I have to have New Year's Resolutions, things to look forward to, goals to reach.

I realized the reason I struggled to set my New Year's Resolutions is that I was trying to plan for a future that I may or may not have.  Bill has often preached goals need to be SMART.  Specific.  Measurable.  Achievable.  Relevant. Time based.  So for now, I settled on these:

"Find the joy in life and acknowledge the blessings of each day." 
(I have so many blessings, I just need to focus on them. Finding joy is a bit harder while being in pain, but that is why it is a resolution!)
 
"Be the type of person God wants you to be right now."
(This means making my heart and mind right with God.)

"Serve someone every day."
(Enduring is often inward focused, I want to look outward to those around me.  With limited physical resources I am being creative.)

"Emotionally connect with each member of my family every day."
(It is all about the people, I love my peeps.)

I set my resolutions just for a day, for the present. As I try to connect, serve, find joy and express gratitude just for the day, hopefully those days will turn into weeks, then months and then years.  2016 is really just made of days, hours and minutes and that is how I will try to live it.


Spent half the day in bed with these two little rascals... keeping my resolution.




Here are some pictures from the Holidays.  We had a great Christmas at home, which was good because I was sick most of the time.

Christmas Eve (the beautiful tree was a gift from a friend and her dad, which she hauled back from Minnesota on top of her minivan)

I was grateful my mom, Omi, could celebrate with us. The boys are wearing their German clothes, we try to celebrate a traditional German Christmas Eve.


We have a family tradition that we go to church every Christmas Eve,  It is one of my favorite traditions.  This year we choose Our Savior Lutheran Church which had a beautiful service.


We spent New Year's Eve in the emergency room, not for me mind you, but for Sam.  He got a concussion when he slammed into our steel basketball standard while sledding.  He is going to be fine, but it was pretty scary.  I was really sick that night too, so I just snuggled up right by him in his bed.

A Thousand Cranes and Fuzzy Red Socks

  
In Japan the crane is a symbol of longevity and good luck because a crane "lives" for one thousand years.  When a thousand origami paper cranes are folded and strung onto pieces of string it becomes a work of art that brings a long life or recovery from illness or injury.  I had never seen such a creation until I opened a foreign stamped box that was sitting on my front doorstep.  As I opened the box the intricacies of the paper, the folds, and the sheer number of individual cranes were unbelievable.  As I read the kind notes inside, the words were blurred because of my tears, such love, such sacrifice, such handiwork, such beauty sent across the vast ocean to me.   My dear friends that I met in China folded each crane, one thousand of them, strung them together and sent them to me with hopes of healing.

Fuzzy red gripper socks, are just that, fuzzy red gripper socks.  They keep your toes warm on cold nights or chilly mornings.   I have a pair in my dresser drawer, not even sure where I got them.  I wore them, at Sammy's request, in the Mayo Clinic hospital as I prepared for brain radiation.  I didn't think much else about my red socks until I got a text from my sister asking me to check my Facebook account.

Now, I must explain something.  I consider myself a fairly intelligent person, even with two brain tumors, until it comes to Facebook.  I can't figure out how it works!  I try to find something, and a half an hour later, I still can't find what I am looking for but I saw what all of my friends "liked" instead.  I am a Facebook dropout and rarely go on it.  My sister knowing this, prompted me to check my Facebook account.  I found pictures of my family and my friends from around the world wearing red socks with messages of love, hope and encouragement.   Fuzzy red gripper socks had taken on the characteristics of one thousand cranes.

Thank you. Thank you for your messages of love, your notes, your emails, your meals, your pictures, your texts, your gifts and mostly, thank you for your faith and prayers.  I am sorry I do not respond to all of you individually.  However, please know I appreciate it and I am so grateful.  The path I am on is much more difficult than even I thought it would be, the physical pain, the emotional fear, and the spiritual stretching isn't easy; but the path is lined with one thousand cranes all wearing red socks cheering me and my little family on.  I realize all of us have our treacherous hills to climb, some public and some private, and I don't know all your struggles.  Please know, I am wearing my red gripper socks for you too.


This is the 1000 paper cranes hanging in my house.
Detail of the origami cranes.

  
The red gripper sock idea was started by one of my favorite cousins Shari Thornburg.  Thank you Shari, I love you!